My Symptoms
Just thought I would create a page for people who really don't feel like reading thru my blog just to find my symptoms so here ya go...
Extreme muscle and joint pain. There is no area that bends and doesn't hurt. The skin isn't effected... Meaning no pain to touch or pull/press. Extreme tightness where the joints are, mostly in my arms and hands/fingers and everywhere that bends or pivots, I am able to make a fist and apply moderate pressure for about 10 seconds and then relax, my fist will stay balled up. Eventually it would relax on it's own but has been known to stay in the same position for hours. I have muscle spasms and twitching in various places. Of course pain follows after the tremors subside. I am almost not able to move after they are gone. The muscles in the back of my neck pulsate and tighten causing my head to bob and gyrate sometimes. My limbs defy gravity. I woke up one morning to my arm leaning on a pillow. Something felt strange so I moved the pillow and the arm stayed in it's position. In the angle of the hands of a clock would show 2:15. It is debilitating to say the least. I have walked with a cane for over 8 years and now walk with a Canadian crutch... And see myself worse each year. In 5-10 more years I am not sure if I would be able to walk.
Extreme muscle and joint pain. There is no area that bends and doesn't hurt. The skin isn't effected... Meaning no pain to touch or pull/press. Extreme tightness where the joints are, mostly in my arms and hands/fingers and everywhere that bends or pivots, I am able to make a fist and apply moderate pressure for about 10 seconds and then relax, my fist will stay balled up. Eventually it would relax on it's own but has been known to stay in the same position for hours. I have muscle spasms and twitching in various places. Of course pain follows after the tremors subside. I am almost not able to move after they are gone. The muscles in the back of my neck pulsate and tighten causing my head to bob and gyrate sometimes. My limbs defy gravity. I woke up one morning to my arm leaning on a pillow. Something felt strange so I moved the pillow and the arm stayed in it's position. In the angle of the hands of a clock would show 2:15. It is debilitating to say the least. I have walked with a cane for over 8 years and now walk with a Canadian crutch... And see myself worse each year. In 5-10 more years I am not sure if I would be able to walk.
