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Showing posts from March, 2015

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Today Is a standard day with the occasional accompanying body shakes. Feeling of vibration on my thighs and fingers mostly. Its like I have a device on vibrate in my pocket. My fingers are now so twitchy that it is taking longer to type this short post. Nothing consumed that would be able to effect me this way. Again a loss. No rhyme no reason. Docs know that its genetic. I have hyper mobility as well but no swelling of the joints so the friggin docs are scratching their heads. I am just so utterly lost and confused. I have some characteristics of one condition and some from another and another.... and another. If I could just transfer my pain, channel it to the doctors then perhaps they would understand what life is like in my body. Sometimes I wish that I could just float above myself without a inch of pain or discomfort. 20 seconds. Its all I ask. 20 seconds of life. Without my body holding me back. People tell me to try and go on disability but was already denied once a few years b

5:00am

Took a nap too early. Everyone is obviously asleep. Hip and shoulder pain severe. Can't get comfortable within myself. Nothing to take for the pain like always. Full day tomorrow. Grin and bear through it.

It's All About Genetics

So I went to a rheumatoid specialist and I apparently have a genetic disorder. Meaning... not fixable. So I will be awaiting the results of the tests. Will post when I find out. Feeling very downward spiral-ish.